Publication
Title
The use of stored tissue samples from minors for genetic research. : interviews with professionals
Author
Abstract
Stored tissue sample collections from minors are useful for genetic research. The ethics of the use of stored tissue samples for genetic research continues be a much debated topic of discussion. The use of pediatric samples poses specific ethical questions. Although a substantial corpus of empirical literature exists on the use of samples from adults, not much is known about the opinion of professionals on the use of samples from children. We conducted ten interviews with professionals in the field. Their primary concerns were the fact that consent procedures should not be too bureaucratic, the need for proper research design and privacy protections, the fact that research should not burden children and guidance from ethics committees.
Language
English
Source (journal)
New genetics and society. - Abingdon, 1999, currens
Publication
Abingdon : 2010
ISSN
1463-6778
Volume/pages
29:3(2010), p. 329-342
ISI
000281852400006
Full text (Publishers DOI)
Full text (publishers version - intranet only)
UAntwerpen
Faculty/Department
Publication type
Subject
Law 
External links
Web of Science
Record
Identification
Creation 12.10.2015
Last edited 09.05.2017