Publication
Title
Human tissue samples for research : a focus group study in adults and teenagers in Flanders
Author
Abstract
A focus group study in adults and teenagers in Flanders: Attitudes towards research on human stored tissue samples may be dependent on the cultural context. To-day, no data exist on the attitudes and values of the Flemish population towards such research. To query these attitudes, we conducted ten focus groups, composed of adults and of minors on the verge of legal competence. Amongst the focus group participants, we found a trust in the advancement of science, and a willingness to contribute tissue to research. The importance attributed to informed consent depended on the type of tissue donated and the effort needed to contribute. Participants did not see high risk associated with research on stored tissue, but thought there was a need for confidentiality protections. The coding of samples was deemed an appropriate protection. With regard to the return of research results, people expected to receive information that could be relevant to them, but the meaning of what is relevant was different between individuals.
Language
English
Source (journal)
Genetic counseling. - Genève
Publication
Genève : 2010
ISSN
1015-8146
Volume/pages
21:2(2010), p. 157-168
ISI
000280056200001
UAntwerpen
Faculty/Department
Publication type
Subject
Law 
External links
Web of Science
Record
Identification
Creation 12.10.2015
Last edited 05.07.2017