Title
Human tissue samples for research : a focus group study in adults and teenagers in Flanders Human tissue samples for research : a focus group study in adults and teenagers in Flanders
Author
Faculty/Department
Faculty of Arts. Philosophy
Publication type
article
Publication
Genève ,
Subject
Philosophy
Law
Source (journal)
Genetic counseling. - Genève
Volume/pages
21(2010) :2 , p. 157-168
ISSN
1015-8146
ISI
000280056200001
Carrier
E
Target language
English (eng)
Abstract
A focus group study in adults and teenagers in Flanders: Attitudes towards research on human stored tissue samples may be dependent on the cultural context. To-day, no data exist on the attitudes and values of the Flemish population towards such research. To query these attitudes, we conducted ten focus groups, composed of adults and of minors on the verge of legal competence. Amongst the focus group participants, we found a trust in the advancement of science, and a willingness to contribute tissue to research. The importance attributed to informed consent depended on the type of tissue donated and the effort needed to contribute. Participants did not see high risk associated with research on stored tissue, but thought there was a need for confidentiality protections. The coding of samples was deemed an appropriate protection. With regard to the return of research results, people expected to receive information that could be relevant to them, but the meaning of what is relevant was different between individuals.
E-info
http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000280056200001&DestLinkType=RelatedRecords&DestApp=ALL_WOS&UsrCustomerID=ef845e08c439e550330acc77c7d2d848
http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000280056200001&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=ef845e08c439e550330acc77c7d2d848
http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000280056200001&DestLinkType=CitingArticles&DestApp=ALL_WOS&UsrCustomerID=ef845e08c439e550330acc77c7d2d848