Title
Genetic research on stored tissue samples from minors : a systematic review of the ethical literature
Author
Faculty/Department
Faculty of Arts. Philosophy
Publication type
article
Publication
Bognor Regis ,
Subject
Philosophy
Source (journal)
American journal of medical genetics : part A. - Bognor Regis, 2003, currens
Volume/pages
149A(2009) :10 , p. 2346-2358
ISSN
1552-4825
1552-4833
ISI
000270745000048
Carrier
E
Target language
English (eng)
Full text (Publishers DOI)
Abstract
The potential benefits of biobank research are well known. Also, the ethical implications of genetic research on stored tissue samples are well discussed in existing literature. The inclusion of tissue samples from minors may have significant scientific value. However, this inclusion raises specific ethical questions. We have performed a systematic search of the literature and found 21 theoretical and empirical articles dealing with the issue. After review, we distilled five clusters of themes: consent, risks, benefits, return of results, and ownership. We have described the different components of these themes, as they occurred in the literature and have provided a discourse on the topic
Full text (open access)
https://repository.uantwerpen.be/docman/irua/99e197/128041.pdf
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