Publication
Title
We are people and so are they : shared intimacies and the ethics of digital ethnography in autism communities
Author
Abstract
This paper reflects on the three main ethical challenges we faced when conducting digital ethnography in three autism Brazilian communities on Facebook: how to position oneself as a researcher, how to deal with the identity of participants, and how to manage data when anonymity is not enforced. After careful consideration of these issues and taking into consideration questions of authorship and vulnerability, we concluded that, firstly, as researchers, we wanted to be more than mere observers of our participants so we aimed for a mutual sharing and involvement between participants and researchers. Secondly, we believe that voice and authorship matter, so we gave our interviewees the choice of being anonymised or not. Finally, we had in mind that our participants may not be fully aware of the consequences of academic publishing, therefore sensitive topics as well as data gathered in the communities were always anonymised.
Language
English
Source (journal)
Research Ethics
Publication
2019
ISSN
1747-0161
2047-6094
Volume/pages
(2019) , p. 1-17
Full text (Publisher's DOI)
Full text (open access)
UAntwerpen
Faculty/Department
Research group
Publication type
Subject
Affiliation
Publications with a UAntwerp address
External links
VABB-SHW
Record
Identification
Creation 14.01.2019
Last edited 15.07.2021
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