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Title
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Reintegration into school of childhood brain tumor survivors : a qualitative study using the International Classification of Functioning, Disability and Health – Children and Youth framework
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Author
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Abstract
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| Purpose: The purpose of this study was to describe experiences of childhood brain tumor survivors (CBTS) and key figures in their environment after returning to school, using the International Classification of Functioning, Disability and Health – Children and Youth framework. Methods: We conducted semi-structured interviews with five children, nine parents, 28 teachers, and 14 health professionals at three predetermined times over a two-year period. A qualitative content analysis was performed by linking meaningful units from transcribed interviews to ICF codes. Results: Children experienced diverse body dysfunctions that could impede school participation, mostly related to knowledge acquisition and application, executive functioning and social life. Support at school and professional aftercare were essential to alleviate the child’s difficulties. The teacher’s attitude, parental involvement, and practices of collaboration belonging to the child’s supportive network further influenced the reintegration process. Also, child-specific factors including emotional reactions to illness, age, and balance between school life and leisure time were considered to affect school readjustment. Conclusions: The International Classification of Functioning, Disability and Health framework is a useful instrument to systematically describe experiences of CBTS and key figures regarding school life, providing a common language to communicate for stakeholders in education and healthcare following the child’s return. |
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Language
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English
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Source (journal)
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Disability and rehabilitation. - London, 1992, currens
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Publication
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London
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2021
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ISSN
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0963-8288
1464-5165
[online]
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DOI
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10.1080/09638288.2019.1708484
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Volume/pages
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43
:8
(2021)
, p. 2610-2620
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ISI
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000506109800001
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Pubmed ID
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31910686
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Full text (Publisher's DOI)
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Full text (open access)
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Full text (publisher's version - intranet only)
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