Publication
Title
COCCOS study : developing a transition program for adolescents with chronic conditions using Experience-Based Co-Design: a study protocol
Author
Abstract
Background During adolescence, adolescents and young adults (AYAs) are expected to transfer their care from the pediatric environment towards an adult-focused setting. To prevent an abrupt transfer of care, it is recommended to provide AYAs with chronic conditions an adequate transition program. The aim of this paper is to describe the study protocol for the development of a transition program for AYAs with common chronic conditions (COCCOS study), using the Experience-Based Co-Design (EBCD) methodology.Methods and analysis A qualitative, participatory study is conducted in Flanders (Belgium). Study participants are AYAs (n >= 15, 14-25 years old, diagnosed with type 1 diabetes, asthma, or obesity), their families, and healthcare providers (n >= 15). The study is composed of eight EBCD stages: clinical site observations, in-depth interviews, trigger film, healthcare providers' feedback event, AYAs' feedback event, joint event, co-design workshops, and a celebration event. Photovoice will take place as a starting point of EBCD. Data will be analyzed using thematic analysis.Results Data collection has started in January 2023 and is expected to be completed in May 2024. As of August 2023, over 15 clinical site observations have been conducted. A total of 18 AYAs, two parents, six healthcare providers have been enrolled and a total of 20 interviews have been conducted.Conclusion Advancing transitional care is essential for tackling negative health outcomes. Applying the innovative participatory EBCD methodology will reveal key elements of transitional care for AYAs with common chronic conditions in the development of a person-centered transition program.Practice implications Study findings will apply key elements of transitional care of AYAs with chronic conditions in the development of an adequate transition program.
Language
English
Source (journal)
PLoS ONE
Publication
2024
ISSN
1932-6203
DOI
10.1371/JOURNAL.PONE.0298571
Volume/pages
19 :4 (2024) , p. 1-11
Article Reference
e0298571
ISI
001198071500016
Pubmed ID
38578769
Full text (Publisher's DOI)
Full text (open access)
UAntwerpen
Faculty/Department
Research group
Project info
The COCCOS study: A CO-design study for developing, implementing and evaluating a transition program for young people with Chronic COnditionS.
Publication type
Subject
Affiliation
Publications with a UAntwerp address
External links
Web of Science
Record
Identifier
Creation 02.05.2024
Last edited 08.05.2024
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