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Title
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Are patients preferences for information and participation in medical decision-making being met? Interview study with lung cancer patients
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Author
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Abstract
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| We examined the degree to which newly diagnosed patients with advanced lung cancer wanted to be informed and involved in medical decision-making, and whether the patients felt their preferences were met. Patients from 13 hospitals in Flanders were interviewed with a standard questionnaire. A total of 128 patients (68%) participated. Of the patients who wanted to be informed about life expectancy, half (53%) reported they were informed, and of those who wanted to be informed about palliative care and end-of-life decisions, 25% and 31% said they were informed, respectively. With regard to participation in medical decision-making (in general, about treatment, transfer or end-of-life), patients who preferred the doctor to make decisions or those who preferred to make the decision themselves often achieved this (in their perception), while patients who wanted an in-between position with some involvement, often did not. To conclude, preferences of patients with lung cancer for information concerning delicate topics and for shared decision-making with the physician were not well met. |
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Language
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English
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Source (journal)
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Palliative medicine. - London
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Publication
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London
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2011
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ISSN
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0269-2163
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DOI
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10.1177/0269216310373169
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Volume/pages
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25
:1
(2011)
, p. 62-70
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ISI
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000286312200006
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Full text (Publisher's DOI)
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